For those of you who are unfamiliar with them and what they do, they are a UK charity dedicated to funding research into spinal muscular atrophy. As their website states, “SMA is a genetic neuromuscular disease, which means it is inherited and affects nerves responsible for muscle function. Although classified as rare, SMA is the leading genetic killer of infants and toddlers, with approximately 95% of the most severely diagnosed cases resulting in death by the age of 18 months. Children with a less severe form of SMA face the prospect of progressive muscle wasting, loss of mobility and motor function.”
As many of you already know, I also have type II spinal muscular atrophy—and as physically limiting as it is for me, I consider myself extremely fortunate (and, indeed, I am). I’m forty-eight, in relatively good health and I can pretty much expect to continue along my merry path in life, buggering it up, for a good while, yet. For some, however, it is a very different story.
So, while I realise we all have our favourite charities and causes that we help out throughout the year as well as Christmas, I hope you might consider downloading The Legacy of Lorna Lovelost. It’s priced very cheaply at £1.54, with all my royalties (£1 per sale) going to The SMA Trust. You get a wonderful cheap read, the brilliant folks at The SMA Trust get a little extra money to help fund research into finding a cure for SMA, and I get … well, the satisfaction of helping and knowing that people are reading my book. Everyone’s, as they say, a winner.